The Forbes Town and District Tennis Club recently held a charity day in hopes to raise money for local kid Leo Doyle and charity service Little Wings.

It was a very successful day with around 300 people coming out to the tennis club to support the cause.

"We had people come from everywhere just to come and support Leo and we are still getting people ringing for donations over the last couple of days asking how they can support," Leo's mum Nikki Doyle said.

Leo starting having trouble with eyes around two years ago.

"It was a couple of days before he started kindergarten and just by chance I happened to be at the eye specialist in Sydney and I was just asking the specialist about a couple of things that he does with he's eyes.

"The specialist said that they were red flags, and we just happened to be in the same space as the paediatric ophthalmologist and she said I'll try and get you in and see him. So we saw him and he took some photos behind the eyes and said he's got underdeveloped foveal pits."

Leo was diagnosed with bilateral foveal hypoplasia and this meant that the back of Leo's eyes are underdeveloped and he won't have clear vision.

Leo got genetic testing done at the Randwick Children's Hospital when testing was new and the family were told that the chances of the test finding something was very slim being less than 30 per cent.

The results took eight months to come back and said that Leo has cone-rod dystrophy meaning Leo's eye sight will deteriorate over time.

The genetic testing showed that the gene that caused the mutation was the 128th on the CRX gene strand.

"Leo was actually the first person in the world to be diagnosed with that particular gene change," Nikki said.

"That means research is very limited so we don't really know a lot about it, they can't give us timelines but they did say usually once the eyesight starts deteriorating it takes a couple of years for it to be completely gone. There's no cures for it so we just have to hope medicine advances."

This year both Nikki and her husband Mitch had genetic testing done to see where the gene came from.

"They say every genetic disorder has a starter, it can just be something that's happened but once it's mutated in the genetics it is genetically passed down."

The tests came back that Nikki was the only one to carry the gene change and this is where it has been passed on.

"It's a really rare form because generally if one parent has it it's usually both parents that have the genetic change and when they have a kid the symptoms show but it's really rare for one parent to have it and then pass it on which is what happened.

"Leo is starting to notice it more, at the moment his central vision does not work. He has peripheral vision so he spends a lot of his time looking out the sides of his eyes," Nikki said.

Leo has been learning braille over the last two terms and continues to enjoy playing football with his mates.

"The Forbes Magpies who Leo plays for switched out the white footballs for bright yellow balls so he can see them a bit better and they've got bibs if both teams are wearing dark coloured jerseys.

"As a community we can't fault them and St Laurences have been amazing as well.

"We have used Little Wings three times now, they are someone who we deal with quite often and I know there are other people in our little community that rely on them too," Nikki said.

Little Wings CEO Clare Pearson said Little Wings are currently supporting a number of seriously ill children, and their families, just like Leo from the Forbes area.

"It is our absolute privilege to be able to assist, working together to ensure children from regional NSW have the access to healthcare that they need and deserve," Clare said.

"When we heard about how the local community was rallying to support Leo and Little Wings we were so delighted. We rely on the support of community to help us fuel our planes to keep up with the growing demand for our service across regional NSW."

"I think we're lucky to live with the community we have, we're definitely feeling the love and support," Nikki added.